Imagine what life would be like if you had a set amount of energy every day. Ten units, for example. And once you’ve used them up, you’re done. You can’t socialize or pick up your kids from school without taking away from the following day. Unlike your friends, you can’t just down a venti cappuccino or “get a second wind.” You’re officially done. That’s what it’s like for people who suffer from chronic illnesses.
The term was coined by Christine Miserandino in her 2003 essay “The Spoon Theory.” The essay details a discussion between Miserandino and a friend at a restaurant. The friend asked what having lupus was like and Miserandino used several spoons from a nearby table to explain. After grabbing the spoons, Miserandino asked her friend to list the different events that make up a typical day. For each one, Miserandino took a spoon away. Each spoon, she explained, represented a unit of energy. People with chronic diseases have to ration their “spoons” or risk running out of energy by the end of the day. To read the whole story click here.
If you were to look at me, you would have no idea that every time I take a step, a sharp pain goes down my left knee. You would have no idea that if I miss a dose of my medicine, my whole body just aches and brings me to tears.
Chronic Fatigue syndrome is not simply being “tired.” It’s a debilitating chronic illness with symptoms that affect sleep, concentration, pain and energy. More than one million Americans have the condition, according to the Centers for Disease Control and Prevention. Here are some peoples descriptions of when Chronic Fatigue feels like:
"Chronic Fatigue is like looking through a foggy glass every day. Nothing ever seems real; it always seems dreamlike."
"Imagine plugging in a dead cell phone over night. When you awake, you expect it to be at 100 percent. But when you wake, it’s only at 9 percent and you have to try and function on that 9 percent. You’re never fully charged."
"A cross between the flu and being intoxicated 24/7."
Chronic Fatigue is a mystery condition. It’s only diagnosed through a process of elimination, and they don’t really know what it is or how to treat it. It could be the result of gut bacteria, some sort of post-viral fatigue, abnormal brainwaves during sleep or maybe just an extreme symptom of some other condition (e.g. depression). Sadly, after the lengthy process of determining that nothing appears to be wrong with you, there’s not a whole lot anyone can do to help you. There are currently no “gold-standard” treatments. The best remaining option is to learn to live around it.
Living with an invisible mental health condition is just as hard as living with any other visibile disability. The positive is not everyone knows what you are living with, the negative is the same. At times people may be confused, not understand, or question your validity because your issue is not visible.
People who suffer with Depression, Anxiety, Bipolar, Eating disorders, Schixophrenia, and Obsessive-Compulsive Disorder struggle many days just to get out of bed. That is just a small list of the many invisible mental health conditions that are invisible.
Those who have food allergies do not want to impose on others, and they learn early on that they must speak up to keep themselves safe and alive. Many people don’t comprehend that even ingesting a crumb of the wrong cookie could be fatal. Speaking up for yourself in public — which can be difficult for all of us — becomes essential for even young children with food allergies.